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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
The Parent Project for Muscular Dystrophy Research INC End duchenne MUSCULAR DYSTROPHY through RESEARCH, advocacy, education, & optimal medical care. 31-1405490 · FY2024 Washington, DC $14.3M $12.9M $12.6M 88% 5% 19 501(c)(3)
Fshd Society Find treatments and a cure for FSHD while empowering our families 52-1762747 · FY2024 Randolph, MA $4.9M $5.5M $5.6M 78% 12% 23 501(c)(3)
Dystonia Medical Research Foundation The mission of the dmrf is to advance RESEARCH for more effective treatments and ultimately a cure for… 95-3378526 · FY2024 Chicago, IL $3.2M $3.0M $6.4M 80% 8% 9 501(c)(3)
Project Als INC To recruit the world's best research scientists and clinicians to work together toward an understanding of… 13-4019464 · FY2023 New York, NY $3.0M $3.4M $1.5M 88% 4% 10 501(c)(3)
Collaborative Trajectory Analysis Project To advance understanding of disease progression in duchenne muscular dystrophy by fostering collaboration… 93-4558784 · FY2024 Cambridge, MA $1.9M $1.1M $952.4K 71% 11% — 501(c)(3)
Inadcure Foundation INC Research towards possible treatment and cure for infantile neuroaxonal dystrophy 81-4763783 · FY2025 Fairfield, NJ $1.6M $660.2K $1.5M 90% 3% — 501(c)(3)
Hampton Roads Biomedical Research Consortium The HAMPTON ROADS BIOMEDICAL RESEARCH CONSORTIUM (hrbrc) was founded in 2020 as a state-sponsored initiative… 85-2555984 · FY2023 Portsmouth, VA $1.4M $399.1K $5.7M 88% 0% — 501(c)(3)
Foundation to Eradicate Duchenne INC The organization's mission is to provide research grants to fund aggressive research into treatments for… 71-0874241 · FY2024 Alexandria, VA $1.1M $827.9K $1.5M 79% 12% — 501(c)(3)
Cure Lbsl Provide funding to rare disease research & support affected families 46-2829156 · FY2024 Arlington, VA $1.1M $845.2K $955.6K 100% 0% 1 501(c)(3)
A Foundation Building Strength INC To find treatments for nemaline myopathy. 26-1761329 · FY2024 Palo Alto, CA $1.0M $1.2M $3.4M 90% 7% — 501(c)(3)
Team Joseph INC Our primary mission includes funding research to find a cure or treatment for duchenne muscular dystrophy. We… 80-0613664 · FY2024 W Bloomfield, MI $1.0M $1.4M $1.4M 78% 9% 3 501(c)(3)
Friends of Fsh Research FRIENDS of FSH RESEARCH a 501c3 organization is working to impact the lives of those affected by FSH muscular… 86-1108537 · FY2024 Kirkland, WA $864.0K $1.3M $450.5K 99% 1% — 501(c)(3)
Muscular Dystrophy Family Foundation INC We assist persons with neuromuscular diseases, including MUSCULAR DYSTROPHY. Each of the past 7 years, we… 35-1040153 · FY2024 Carmel, IN $635.1K $442.3K $1.0M 69% 12% 3 501(c)(3)
Charleys Fund INC To accelerate the development of life-saving treatments for duchenne muscular dystrophy "dmd" 20-2014968 · FY2024 Gt Barrington, MA $628.5K $492.0K $1.1M 92% 2% 3 501(c)(3)
Little Hercules Foundation INC LITTLE HERCULES FOUNDATION works to improve the lives of those diagnosed with and families facing duchenne… 46-1427334 · FY2024 Dublin, OH $612.6K $620.6K $26.4K 75% 4% 5 501(c)(3)
Akari Foundation The Akari Foundation provides culturally and linguistically tailored education advocacy and support to… 82-2557369 · FY2024 San Antonio, TX $591.5K $554.5K $137.9K 93% 1% 5 501(c)(3)
Kindness Over Muscular Dystrophy INC The mission of the organization is to provide charitable giving to support MUSCULAR DYSTROPHY research as… 84-2603015 · FY2024 Ridgefield, CT $508.9K $401.9K $334.4K 92% 6% — 501(c)(3)
Dynami Foundation To raise funds for the purpose of contributing to cancer research and treatment 83-4151559 · FY2024 Birmingham, MI $443.7K $201.1K $926.9K 75% 0% — 501(c)(3)
Leukemia Research Foundation of Delaware Funding for cancer research. 26-1215347 · FY2023 Middletown, DE $395.8K $2.9K $2.5M 0% 0% — 501(c)(3)
Virginia Eye Foundation 20-1612154 · FY2024 Norfolk, VA $369.0K $471.7K $132.4K 96% 0% — 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
Greg Marzolf JR Foundation Fund research to find a cure for Neuromuscular disease 32-0012563 · FY2024 Saint Paul, MN $304.9K $153.4K $472.4K 91% 8% — 501(c)(3)
Curears Funding Mitochondrial Disease Research 86-3568273 · FY2024 Raritan, NJ $283.5K $241.9K $411.4K 90% 5% — 501(c)(3)
Walking Strong INC WALKING STRONG helps duchenne families with their over-bearing medical needs that are most often not covered… 47-1648097 · FY2024 West Hills, CA $279.2K $229.0K $425.9K 80% 11% 1 501(c)(3)
Tall Cedars Foundation Raise money and awareness for muscular dystrophy assoc 23-2129677 · FY2024 Harrisburg, PA $267.1K $158.4K $2.6M 62% 7% — 501(c)(3)
Team Drea Foundation INC Support ALS research 81-3938375 · FY2024 Raleigh, NC $264.4K $343.5K $187.5K 78% 6% — 501(c)(3)
Finns Friends To enhance the quality of life for the families affected by duchenne muscular dystrophy. 85-0509538 · FY2024 Longview, TX $233.1K $207.9K $178.9K 78% 1% — 501(c)(3)
Cure Lgmd2i Foundation Fund research for CURE of limb girdle muscular dystrophy 80-0680447 · FY2024 Columbia, PA $222.8K $415.5K $360.8K 95% 0% — 501(c)(3)
Tylers Tribe Foundation Funding for als research and patients 88-1033897 · FY2024 Carlsbad, CA $182.4K $137.2K $176.4K 69% 20% — 501(c)(3)
Powell-Drescher Ovarian Cancer Research Foundation 88-2355055 · FY2024 Seattle, WA $161.6K — $262.3K — — — 501(c)(3)
Foster Foundation INC Funding for the study and research of osteosarcoma 11-3633830 · FY2024 Garden City, NY $144.9K $15.4K $2.9M 0% 0% — 501(c)(3)
Vwm Families Foundation INC 81-2058803 · FY2025 Greenwich, CT $89.4K — $68.2K — — — 501(c)(3)
Harbor Orthopaedic Researh and Education Fund 93-2626332 · FY2024 Torrance, CA $82.7K — $229.3K — — — 501(c)(3)
Foundation for Thymic Cancer Research 02-0622353 · FY2024 Sleepy Hollow, NY $82.5K — $27.7K — — — 501(c)(3)
Van Stephenson Memorial Cancer Research Fund INC 20-2789334 · FY2025 Nashville, TN $81.2K — $144.2K — — — 501(c)(3)
Wittek Research Foundation for Hypertrophic Cardiomyopathy INC 86-1682122 · FY2023 Tenafly, NJ $73.9K — $0 — — — 501(c)(3)
Kurt Peter Foundation Raise funds and make grants for research into a treatment or cure for limb girdle muscular dystrophy type 2c… 27-1310545 · FY2024 Menlo Park, CA $72.7K $63.8K $1.3M 93% 0% — 501(c)(3)
Miami Orthopaedic Research Foundation INC 85-0805490 · FY2024 Miami, FL $70.7K — $84.7K — — — 501(c)(3)
Logan Jett Research Foundation INC 47-3178687 · FY2024 Tega Cay, SC $67.0K — $199.0K — — — 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org