Lewy Body Dementia Association INC EIN 05-0577683

Lewy Body Dementia Association INC

EIN  05-0577683 Public charity (501(c)(3)) Lilburn, GA Founded 2003
Form 990 (PDF) Compare with another nonprofit →
Verified accurate 8/23/26 · see original filing: IRS
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Size
$1–10M
What they do
Supports people with Lewy body dementias through outreach, education, and research.
Leadership
Allison Feldman · Executive Director · $229K
Money in and out
$5.1M revenue, $4.4M expenses
Bottom line
82% program efficiency

Supports people with Lewy body dementias through outreach, education, and research. For fiscal year 2025 it reported $5.1M in revenue, $4.4M in expenses, and $10.3M in net assets.Pt I

Where the money goes · FY2025
Total revenue
$5.1M
Pt VIII · Ln 12
Total expenses
$4.4M
Pt IX · Ln 25
Net assets
$10.3M
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): $662K
Where spending went · Part IX cols B–D
Program services $0.82 Management & general $0.12 Fundraising $0.05
Program efficiency
82%
of spending reaches programs▲ +3% vs prior filing year
Operating runway
28.4mo
months of highly liquid reserves at operating expense rate▲ +1% vs prior filing year
Surplus margin
+13%
revenue over expenses, this year▼ -31% vs prior filing year

Summary of the Filing

Part I · fiscal year 2025 · Form 990
Revenue
$5.1M
FY2025▲ +3%
Expenses
$4.4M
FY2025▲ +10%
Total assets
$10.8M
FY2025▲ +12%
Total liabilities
$462K
FY2025▲ +40%
Total revenue
$5.1M
Pt VIII · Ln 12
Total expenses
$4.4M
Pt IX · Ln 25
Net assets
$10.3M
Pt X · Ln 32
Revenue less expensesPt I · Ln 19$662K
Total assetsPt X · Ln 16$10.8M
Program-expense ratioPt IX · col B82%
Voting members of governing bodyPt I · Ln 310
Independent voting membersPt I · Ln 410
Mission & Programs · Part III

Where the work happens

2 program services account for $3.7M of program spending, described in the organization's own filed words · FY2025.
01

Lewy body dementia association, inc. (lbda) provides information on lewy body dementias to caregivers, families, professionals, and the general public, and encourages scientific advancements.

$2.1Mprogram expense
02

In furtherance of its mission to support those with LBD, caregivers, and research related to the disease, the association enters into contracts with outside entities to assist them with education, support, surveys, email campaigns and research efforts addressing the disease.

$1.6Mprogram expense

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Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CLewy Body Dementia Association INC
EINHdr · item D05-0577683
Principal addressHdr · item CLilburn, GA
WebsiteHdr · item Jwww.lbda.org
Year of formationHdr · item L2003
State of legal domicileHdr · item MGA
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFDiseases & Disorders (G96)
Ruling yearIRS BMFFeb 2004

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a10
Independent voting membersPt VI · Ln 1b10
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13Yes
Document retention policyPt VI · Ln 14Yes
CEO/top-official compensation independently reviewedPt VI · Ln 15aYes
Family or business relationships among officers/directorsPt VI · Ln 2No

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
Executive Director
$229,278Pt VII · Sec A
Director of Scientific Initiatives
$189,140Pt VII · Sec A
Chief Scientific Officer
$140,385Pt VII · Sec A
Director of Professional & Community Education
$122,566Pt VII · Sec A
Vice President of Strategic Partnerships
$118,752Pt VII · Sec A
Director of Development
$113,500Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A

Allison Feldman’s $229K as Executive Director is at the 82nd percentile of top reported officer pay among 731 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 8 named individuals · Part VII

NameFY2025FY2024FY2023FY2022FY2021FY2020
Allison Feldman$229,278$229,285$217,028$107,374
Keith Fargo$189,140$181,919$173,405
Angela Taylor$118,752$155,931$149,328$140,338
Sudhir Sivakumaran$140,385
Ian Richard$137,931$128,310$119,013
Todd Graham$132,394$130,000
Mark Wall$132,394$130,000
Julia Wood$122,566$110,030$105,429$100,968

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Statement of Revenue

Part VIII
Contributions & grants$4.3M · 85%
Program service revenue$477K · 9%
Investment income$292K · 6%
Contributions & grants85%$4.3M
Program service revenue9%$477K
Investment income6%$292K
Other revenue$2K
— government grantsLn 1e$542K
Total revenueLn 12$5.1M

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.82 Management & general $0.12 Fundraising $0.05
Program services82%$3.7M
Management & general12%$553K
Fundraising5%$234K
Total functional expensesLn 25$4.4M

Balance Sheet

Part X · end of year
CashLn 1$1.8M
Total assetsLn 16$10.8M
Total liabilitiesLn 26$462K
Total net assetsLn 32$10.3M
Months of cash on handcomputed4.9

Financial Metrics

Form 990 · FY2025 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $10.5M · Operating expenses/yr $4.4M
28.4 months
Where the money goes
Program services
Program services $3.7M · Total expenses $4.4M
82%
Management & General
Management & general $553K · Total expenses $4.4M
12%
Fundraising
Fundraising $234K · Total expenses $4.4M
5%
Cost to raise $1
Fundraising expense (3-yr avg) $234K · Solicited contributions (3-yr avg) $3.8M
$0.06 to raise $1 (3-yr avg)
Where the money comes from
Contribution dependence
Contributions & grants $4.3M · Total revenue $5.1M
85%
Government reliance
Government grants $542K · Total revenue $5.1M
11%
Earned-income share
Program service revenue $477K · Total revenue $5.1M
9%
Investment reliance
Investment income $292K · Total revenue $5.1M
+6%
Program self-sufficiency
Program service revenue $477K · Total expenses $4.4M
11%
Growth & trend
Revenue growth (YoY)
This year $5.1M · Prior year $5.0M
+3%
Revenue CAGR
FY2020 $3.7M · FY2025 $5.1M
+6%
Net-asset trend (YoY)
End of year $10.3M · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $5.1M · Expenses $4.4M
+13%
Liabilities-to-Assets
Total liabilities — · Total assets $10.8M
Net-asset ratio
Net assets $10.3M · Total assets $10.8M
96%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) $8.7M · Other securities (Pt X, ln 12) — · Total assets (Pt X, ln 16) $10.8M
81%
People & payroll
Highest Reported Total Compensation
Individual Allison Feldman · Reported title Executive Director · Highest reported compensation $229K · Total expenses $4.4M
5%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $2.5M · Total expenses $4.4M
55%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 82%
Overhead ratio 12%
Fundraising cost ratio 5%
Revenue growth 3%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 2 funders$12K
Grants paid · 101 grants · $1.5M · 2020–2025
Duke UniversityNC · FY2025$149,698
University of FloridaFL · FY2025$50,000
Johns Hopkins UniversityMD · FY2025$12,500
University of MiamiFL · FY2025$12,500
The Methodist HospitalTX · FY2025$12,500
The Ohio State UniversityOH · FY2025$12,500
University of FloridaFL · FY2025$12,500
University of Texas Health San AntonioFY2025$12,500
University of PittsburghPA · FY2025$12,500
Emory UniversityGA · FY2025$12,500
Mayo Clinic JacksonvilleMN · FY2025$12,500
Mayo Clinic ArizonaMN · FY2025$12,500
Mayo ClinicMN · FY2025$12,500
University of WashingtonFY2025$12,500
See all 101 grants →

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2025 (Latest)$5.1M revenue · viewing · ⤓ 990 PDF
FY2024$5.0M revenue · ⤓ 990 PDF
FY2023$3.6M revenue · ⤓ 990 PDF
FY2022$4.2M revenue · ⤓ 990 PDF
FY2021$2.9M revenue · ⤓ 990 PDF
FY2020$3.7M revenue · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2025IRS
Classification, formation year, addressIRS Business Master File
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