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Organization	Location	Revenue	Expenses	Assets	Program	Fundr. cost	Employees	Type
The Association for Frontotemporal Degeneration Promote and fund research into developing better diagnostic processes, therapies (cont'd in sch o)and cures… 41-2073220 · FY2024	Kng of Prussa, PA	$14.4M	$11.6M	$60.1M	82%	14%	64	501(c)(3)
Dermatology Foundation The purposes of the organization is the funding of research in the field of DERMATOLOGY in order to advance… 04-6115524 · FY2024	Skokie, IL	$7.2M	$6.0M	$60.9M	75%	19%	8	501(c)(3)
Consortium of Multiple Sclerosis Centers INC The Consortium of Multiple Sclerosis Centers Inc. was established to enhance collaboration by the foremost MS… 22-3216416 · FY2024	Hackensack, NJ	$5.8M	$6.1M	$4.4M	79%	0%	16	501(c)(3)
Orthopaedic Research and Education Foundation Improving lives by supporting excellence in orthopaedic research. 36-6009467 · FY2024	Rosemont, IL	$4.7M	$6.2M	$20.0M	80%	12%	14	501(c)(3)
Orthopaedic Research Society The ORTHOPAEDIC RESEARCH SOCIETY (the "SOCIETY") is a nonprofit corporation organized to support, develop… 36-3180285 · FY2024	Rosemont, IL	$4.4M	$4.2M	$9.9M	61%	0%	11	501(c)(3)
The Center for Autism a Nj Nonprofit Corporation To provide services for adults with AUTISM spectrum disorders and pervasive developmental delays that have… 27-0155489 · FY2024	Newark, NJ	$2.4M	$2.0M	$3.6M	86%	0%	26	501(c)(3)
Arthritis Research Center Foundation INC To increase the general body of medical knowledge regarding rheumatic diseases (ARTHRITIS-related illnesses)… 48-1223461 · FY2024	Wichita, KS	$1.9M	$1.7M	$331.7K	93%	0%	16	501(c)(3)
Orthopaedic Foundation for Active Lifestyles INC Research concerning ORTHOPAEDIC surgery and musculoskeletal diseases to advance education, patient care, and… 06-1605002 · FY2024	Stamford, CT	$1.6M	$822.8K	$6.1M	79%	0%	7	501(c)(3)
Lymphatic Education & Research Network INC (le&rn) The organization's mission is to fight LYMPHATIC diseases and lymphedema through EDUCATION, RESEARCH and… 58-2404527 · FY2025	New York, NY	$1.3M	$1.8M	$3.6M	81%	9%	10	501(c)(3)
Adnp Kids Research Foundation Rare disease support, patient advocacy, education, and scientific research and funding treatment studies and… 30-0964243 · FY2023	Brush Prairie, WA	$1.1M	$1.1M	$428.1K	100%	0%	—	501(c)(3)
Cornelia De Lange Syndrome Foundation INC Family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into… 06-1057497 · FY2024	Avon, CT	$1.1M	$1.1M	$3.4M	76%	11%	12	501(c)(3)
Asxl Rare Research Endowment Foundation A family-led organization that supports research to increase the understanding of the ASXL gene family and… 82-3890665 · FY2024	Gorham, ME	$887.6K	$474.9K	$1.1M	80%	5%	1	501(c)(3)
International Foundation for Autoimmune&autoinflammatory Arthri We are leaders in advancing education, advocacy, and research for those affected by AUTOIMMUNE &… 27-1214308 · FY2024	Saint Louis, MO	$835.1K	$610.2K	$660.4K	78%	2%	9	501(c)(3)
Association of Departments of Family Medicine Association of Departments of Family Medicine (ADFM) is devoted to transforming care, education, and research… 52-1139665 · FY2024	Leawood, KS	$788.2K	$755.4K	$1.4M	73%	0%	—	501(c)(3)
Foundation of the Consortium of Multiple Sclerosis Centers The Organization was established for the promotion of educational and research scholarships for the… 31-1698640 · FY2024	Hackensack, NJ	$735.7K	$312.6K	$561.1K	78%	0%	—	501(c)(3)
The Amyloidosis Foundation The organizations mission is to increase education and awareness of AMYLOIDOSIS, to assist patients in… 20-0291856 · FY2024	Clarkston, MI	$688.5K	$602.5K	$1.1M	80%	10%	3	501(c)(3)
Spondyloarthritis Research and Treatment Network Our mission is to foster SPONDYLOARTHRITIS RESEARCH and education in north america. We accomplish this… 46-4072112 · FY2023	Portland, OR	$669.1K	$598.0K	$2.4M	83%	0%	—	501(c)(3)
Spine Technology and Educational Group Organization The ORGANIZATION promotes research and education in the field of spinal disorders by supporting EDUCATIONAL… 26-4589051 · FY2024	Wheaton, IL	$647.9K	$538.4K	$441.9K	98%	0%	—	501(c)(3)
The United Leukodystrophy Foundation INC The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and… 35-1557361 · FY2024	Chicago, IL	$596.3K	$553.0K	$1.7M	69%	5%	2	501(c)(3)
Brain Support Network The BRAIN SUPPORT NETWORK is dedicated to the well-being of those challenged by neurodegenerative disorders… 46-0771864 · FY2025	Menlo Park, CA	$565.5K	$401.3K	$1.4M	94%	1%	10	501(c)(3)
Pediatric Nephrology Research Consortium The purpose is to function as a non-profit educational, scientific and reserach organization to enable and… 83-4358742 · FY2024	Baltimore, OH	$563.7K	$788.5K	$177.5K	100%	0%	—	501(c)(3)
Scleroderma Foundation of Greater Chicago 3 fold mission of support, education, and research. Support: to help patients and their families cope with… 36-3238642 · FY2024	Chicago, IL	$456.0K	$308.1K	$3.6M	61%	14%	2	501(c)(3)
Alzheimers & Dementia Resource Center INC 59-2496511 · FY2024	Winter Park, FL	$448.2K	$757.2K	$212.7K	62%	23%	7	501(c)(3)
American Association of Orthopaedic Medicine The organization provides information and educational programs on the accurate diagnosis and comprehensive… 26-3014423 · FY2024	Windsor, WI	$416.9K	$355.9K	$238.5K	72%	0%	—	501(c)(3)
Pan American Ophthalmological Foundation The primary purpose is to promote the development of ophthalmology and related sciences among… 94-2733047 · FY2024	Pantego, TX	$356.5K	$124.1K	$3.0M	69%	0%	—	501(c)(3)
Mississippi Centers for Autism Andrelated Developmental Disabilities The organization provides clinical sessions on site with patients. 20-4797999 · FY2024	Diberville, MS	$322.1K	$352.3K	$217.2K	71%	0%	—	501(c)(3)
Acromegaly Community INC Conference to educate the public and support research regarding the medical condition known as ACROMEGALY. 27-2116493 · FY2024	Grove, OK	$312.8K	$229.4K	$679.8K	97%	0%	1	501(c)(3)
Yaya Foundation for 4h Leukodystrophy Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional… 82-3888108 · FY2024	Minneapolis, MN	$284.1K	$410.8K	$323.4K	50%	31%	2	501(c)(3)
American Ophthalmological Society Professional organization formed primarily to promote ophthalmologic education and research. 41-1235482 · FY2024	San Francisco, CA	$268.2K	$644.4K	$1.1M	66%	0%	—	501(c)(3)
American Association of Certified Orthoptists INC The purpose of the ASSOCIATION shall be to serve its members, provide continuing education, and promote… 23-7388955 · FY2024	Spring, TX	$211.7K	$115.4K	$464.2K	91%	0%	—	501(c)(3)
Twentieth Century Orthopaedic Association As recognized leaders of the ORTHOPAEDIC community in north america, tcoa exists to promote research, forge… 46-1929656 · FY2024	Jacksonville, FL	$207.1K	$205.1K	$88.3K	98%	0%	—	501(c)(3)
Olc Foundation Support of The Orthopaedic Learning Center for educational, scientific and charitable purposes 81-2223822 · FY2020	Rosemont, IL	$200.0K	$200.0K	$0	100%	0%	—	501(c)(3)
Chord Foundation The objective of the consortium for harmonizing outcomes research in dermatology (CHORD) is to perform… 86-2299450 · FY2024	New Hyde Park, NY	$189.8K	$104.9K	$1.1M	86%	0%	—	501(c)(3)
Pituitary Network Association INC The organizations mission is to support, promote, pursue and encourage fund research on pituitary disorder in… 33-0530465 · FY2024	Thousand Oaks, CA	$156.1K	$235.7K	$293.2K	78%	0%	3	501(c)(3)
Lupus Foundation of New England INC To support research concerning the cause and treatment of LUPUS erythematosus and to prepare and distribute… 23-7385576 · FY2024	Worcester, MA	$147.2K	$307.1K	$580.3K	71%	6%	2	501(c)(3)
Organization of Datum Clinical Research 81-4057095 · FY2022	Lewisville, NC	$125.0K	—	$0	—	—	—	501(c)(3)
X Out Ald INC X out ALD is a 501c3 organization dedicated to increasing awareness of adrenoleukodystrophy and supporting… 85-1423811 · FY2024	Bloomington, MN	$100.6K	—	$9.0K	—	—	—	501(c)(3)
Association for the Bladder Exstrophy Community The ASSOCIATION for the BLADDER EXSTROPHY COMMUNITY exists to provide information about this rare defect and… 68-0252009 · FY2024	Vero Beach, FL	$92.9K	—	$34.3K	—	—	—	501(c)(3)
Lupus Foundation of Colorado INC The purposes of the organization are to promote awareness and understanding by the general public, to educate… 84-0763686 · FY2023	Golden, CO	$53.0K	$94.6K	$179.7K	91%	4%	2	501(c)(3)

2,046,138

nonprofits

212,946

funders

12,515,252

grants

22,549,931

directors

214,365

service providers

549,896,012

financial lines

Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org