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Organization	Location	Revenue	Expenses	Assets	Program	Fundr. cost	Employees	Type
Jett Foundation INC JETT FOUNDATION empowers people and families impacted by duchenne muscular dystrophy through the development… 04-3563445 · FY2024	Norwell, MA	$5.1M	$3.4M	$10.4M	74%	15%	14	501(c)(3)
Fshd Society Find treatments and a cure for FSHD while empowering our families 52-1762747 · FY2024	Randolph, MA	$4.9M	$5.5M	$5.6M	78%	12%	23	501(c)(3)
Oak Tree Family Fund Oaktree will continue to support the 3east program at mclean hospital. We are going to also focus our capital… 87-1342579 · FY2024	Kennett Square, PA	$4.8M	$108.1K	$5.3M	92%	0%	—	501(c)(3)
Coming Together for a Cure INC Provide a renewed hope for people with muscular dystrophy and other life-threatening diseases by advancing… 47-2585356 · FY2024	Wichita, KS	$4.0M	$4.0M	$51.4K	94%	0%	—	501(c)(3)
Myotonic Dystrophy Foundation INC To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic… 20-5014628 · FY2024	Oakland, CA	$3.7M	$3.8M	$5.8M	88%	7%	14	501(c)(3)
A Foundation Building Strength INC To find treatments for nemaline myopathy. 26-1761329 · FY2024	Palo Alto, CA	$1.0M	$1.2M	$3.4M	90%	7%	—	501(c)(3)
Mshh Donor Closet To create and provide services and resources that will enhance the quality of life for people with multiple… 91-2006980 · FY2024	Edmonds, WA	$881.3K	$846.2K	$1.2M	100%	0%	5	501(c)(3)
Friends Foundation of the Carolinas The organization is committed to bringing people together to share collective resources to help those… 92-0441960 · FY2025	Charlotte, NC	$679.5K	$585.2K	$702.7K	95%	0%	1	501(c)(3)
Muscular Dystrophy Family Foundation INC We assist persons with neuromuscular diseases, including MUSCULAR DYSTROPHY. Each of the past 7 years, we… 35-1040153 · FY2024	Carmel, IN	$635.1K	$442.3K	$1.0M	69%	12%	3	501(c)(3)
Charleys Fund INC To accelerate the development of life-saving treatments for duchenne muscular dystrophy "dmd" 20-2014968 · FY2024	Gt Barrington, MA	$628.5K	$492.0K	$1.1M	92%	2%	3	501(c)(3)
Little Hercules Foundation INC LITTLE HERCULES FOUNDATION works to improve the lives of those diagnosed with and families facing duchenne… 46-1427334 · FY2024	Dublin, OH	$612.6K	$620.6K	$26.4K	75%	4%	5	501(c)(3)
Akari Foundation The Akari Foundation provides culturally and linguistically tailored education advocacy and support to… 82-2557369 · FY2024	San Antonio, TX	$591.5K	$554.5K	$137.9K	93%	1%	5	501(c)(3)
Stand Tall Foundation INC 87-3160127 · FY2024	Stony Brook, NY	$590.0K	$346.9K	$246.2K	100%	0%	—	501(c)(3)
Myasthenia Gravis Holistic Society INC Raising funds for the support and education of clients, family and friends that have been diagnosed with… 85-3065263 · FY2024	Decatur, GA	$514.0K	$472.0K	$109.3K	100%	0%	3	501(c)(3)
Kindness Over Muscular Dystrophy INC The mission of the organization is to provide charitable giving to support MUSCULAR DYSTROPHY research as… 84-2603015 · FY2024	Ridgefield, CT	$508.9K	$401.9K	$334.4K	92%	6%	—	501(c)(3)
The Calliope Joy Foundation To raise money for children and their families impacted by leukodystrophies 90-1005140 · FY2022	Bala Cynwyd, PA	$447.7K	$354.0K	$76.1K	23%	14%	1	501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024	Manalapan, NJ	$310.5K	$423.1K	$352.0K	83%	0%	2	501(c)(3)
Walking Strong INC WALKING STRONG helps duchenne families with their over-bearing medical needs that are most often not covered… 47-1648097 · FY2024	West Hills, CA	$279.2K	$229.0K	$425.9K	80%	11%	1	501(c)(3)
Finns Friends To enhance the quality of life for the families affected by duchenne muscular dystrophy. 85-0509538 · FY2024	Longview, TX	$233.1K	$207.9K	$178.9K	78%	1%	—	501(c)(3)
Lost Lake Run INC Raise awareness of LOST LAKE non-profit in fund-raising efforts for cystic fibrosis foundation support. 20-5812503 · FY2024	Anchorage, AK	$231.2K	$222.0K	$16.3K	41%	16%	1	501(c)(3)
Hannahs Hope for Giant Axonal Neuropathy INC Dedicated to funding research for a treatment and/or a cure for GIANT AXONAL NEUROPATHY 45-0593226 · FY2024	Rexford, NY	$198.4K	$538.5K	$2.9M	87%	0%	2	501(c)(3)
Fishing for MD Foundation INC To utilize fundraising activities, offshore FISHING sponsorships and tournament winnings to directly… 81-3450854 · FY2024	Dayton, MD	$184.8K	$260.5K	$450.7K	82%	0%	3	501(c)(3)
Tylers Tribe Foundation Funding for als research and patients 88-1033897 · FY2024	Carlsbad, CA	$182.4K	$137.2K	$176.4K	69%	20%	—	501(c)(3)
Tall Trees Foundation Provide support and financial assistance to current and future employees of palo alto hills golf & country… 86-2937128 · FY2024	Palo Alto, CA	$163.0K	$37.6K	$390.3K	90%	0%	—	501(c)(3)
Ryan's Quest INC The mission of RYAN'S QUEST is to increase awareness of duchenne muscular dystrophy with the purpose of… 26-1890529 · FY2024	Hamilton, NJ	$161.0K	$83.8K	$1.5M	90%	0%	—	501(c)(3)
Needlers Foundation Raise funds for neurological surgeries for underprivileged children 11-2543741 · FY2024	New York, NY	$132.4K	$140.3K	$81.7K	86%	0%	—	501(c)(3)
Timberland Hills Foundation INC 93-2576980 · FY2024	Cumberland, WI	$130.0K	—	$82.5K	—	—	—	501(c)(3)
Bob Tallmans Childrens Charities INC 76-0654509 · FY2024	Houston, TX	$129.2K	—	$64.8K	—	—	—	501(c)(3)
Chris Carrino Foundation for Fshd INC To raise funds and awareness for the cure and prevention of facioscapulhumeral dystrophy (fhsd) and to assist… 26-3424190 · FY2024	Marlboro, NJ	$125.5K	$146.6K	$126.5K	100%	0%	—	501(c)(3)
Als Fundraiser 41-1931854 · FY2024	Roseau, MN	$119.0K	—	$92.8K	—	—	—	501(c)(3)
Cystic Fibrosis Association of West Plains INC Raise funds for CYSTIC FIBROSIS awareness and research 43-1661305 · FY2024	West Plains, MO	$118.4K	$103.4K	$446.3K	95%	4%	—	501(c)(3)
Eating Disorder Support Fund 99-0827866 · FY2024	Dallas, TX	$100.0K	—	$0	—	—	—	501(c)(3)
The Sandy Hahn Foundation To spread awareness for msa (multiple system atrophy) and help raise funds. 88-1682666 · FY2024	Avon Lake, OH	$100.0K	$100.6K	$83.0K	100%	0%	—	501(c)(3)
Miller McNeil Woodruff Foundation Funraising to raise awareness, fund research and offer support for those affected by sma, spinal muscular… 45-2643205 · FY2022	Rogers, AR	$89.0K	$83.4K	$0	100%	0%	—	501(c)(3)
Foundation for Research and Advocacy for Muscle Pain Education 47-3670961 · FY2024	New York, NY	$86.5K	—	$178.1K	—	—	—	501(c)(3)
Jordan Hays Foundation The foundation's mission is to organize fund raising activites to provide funds for research to find a cure… 27-2874778 · FY2024	Wentzville, MO	$82.3K	—	$13.1K	—	—	—	501(c)(3)
Leos Pride Foundation To support families with Spinal Muscular Athrophy and promote inclusivity. 47-4456113 · FY2024	Ballentine, SC	$80.9K	$156.8K	$466.4K	96%	0%	—	501(c)(3)
Kurt Peter Foundation Raise funds and make grants for research into a treatment or cure for limb girdle muscular dystrophy type 2c… 27-1310545 · FY2024	Menlo Park, CA	$72.7K	$63.8K	$1.3M	93%	0%	—	501(c)(3)
Warrior Jace Thompson Foundation Raise funds to support US based clinical trial programs related to diffuse intrinsic pontine glioma (dipg). 84-1765042 · FY2024	Mount Pleasant, NC	$31.4K	$60.7K	$31.8K	94%	0%	—	501(c)(3)

2,046,138

nonprofits

212,946

funders

12,515,252

grants

22,549,931

directors

214,365

service providers

549,896,012

financial lines

Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org